Monday, February 28, 2011

It's been a while

I apologize for the delay in posting. But, it has been a crazy few weeks. I am currently in Spartanburg and have been here for just under a week because last Wednesday DAD CAME HOME!
We are so excited to have him back at the house. It hasn't been without challenges- he is wheelchair/walker dependent (much more emphasis on the walker), and we are all having to learn his limitations. Even though his physical and occupational therapists aimed to have him able to stay on his own, going from a facility with round-the-clock nursing care to NO nursing care is a HUGE change. But, it is nice to figure this out together.
Dad was so excited to catch up on his news (he is a news junkie and his hospital schedule often had him missing his favorite shows), have some more variety in food choice, and was so thrilled to see Donald the Dog. Donald wasn't so sure what to think about Dad's walker or wheelchair, but is slowly getting more comfortable.

Also, we have confirmed that Dad's diagnosis is officially transverse myelitis and NOT neuro myelitis optica. This is great news in that neuro myelitis optica is more similar to MS and typically paralysis will recur, where as transverse myelitis, while it can recur, typically only occurs once.



This is a picture of Dad moving his foot when we were at his eye exam to rule out neuro myelitis optica. I have one of his face, but he was pushing 3 months with no hair cut, so I'll get an updated one! On Saturday Drew, Mom, Dad, and I all went with Dad to get his first clip. First trip since he'd  been home! Think his sylist thought we were a crazy entourage! If he'll let me, I'll do a before/after post later.

Mom has had a rough few weeks. She had a bad cold and has just been extremely tired. Last week she seemed to be doing a bit better---just in time for her next chemotherapy session last Thursday. This morning she had a CT Scan to determine whether or not that was her last session! We are praying that the scan will show the cancer is gone. She'll get her results Thursday. Her doctors have also discussed her participating in a new study where patients take a drug for a period of time after finishing treatment to see if it reduces remission rates (but the drugs will have side effects). Prayers for discernment about whether or not she should participate are appreciated.

A picture from Mom's Christmas Eve, Eve chemo session. Just watching a little Youtube. Her sessions run 5 1/2 - 6 hours (when she first started it was 7 1/2!

In other news, my niece Sophia has the flu! Please also lift her, John, and Bianca up! Sad when a sweet baby has to be sick.

Thank you to everyone for your continued support. I'll try update again soon.

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